I saw my gastroenterologist the other day for a regular checkup. The first words out of my mouth were that I’ve been doing well lately on Remicade every 6 weeks, much better than I had been doing on it every 7 weeks.
She said that she wanted me to get back down to every 7 weeks, though she didn’t mention any timeline. I told her that I’d prefer to continue at the 6-week interval because I spend less time being too tired to function. There was no further discussion of changing my Remicade intervals.
I suspect that she’s under pressure to reduce the frequency of my treatments. I’m not sure where the pressure is coming from. All I know is that I have a new and uneasy feeling that my health may become secondary to considerations of cost or following prescription guidelines that have little to do with quality of life again.