Medical records: the lost years

There is an outbreak of mumps in my city, so I figured it’s time to check when I last got vaccinated against this disease. I called my doctor’s office to find out what they had in my records about all the vaccines I had in the past 20+ years.

The nurse called me back today to say that they don’t have any records for me before 2010. I had changed doctors in 2010 when my old GP retired and personally photocopied and hand-delivered my records from that office to the new office, so they should have had them.

It’s hard to express how frustrated, disappointed and outright angry I am that those records are missing. The missing years cover my diagnosis with Crohn’s as well as the 4 years before that when I had undergone every test for arthritis, Lupus, tropical diseases, and countless scans of various kinds, dislocated my hips 3 times, etc. They are missing the years when I received probably about 10 different kinds of¬†vaccines before being put on Remicade.

I called my former doctor’s office, which, luckily, still exists — it’s run by different doctors now. The receptionist was sympathetic. She¬†found out that my former doctor is on holiday; when she comes back in about a month, they’ll see about getting my old records out of the storage facility where they’re being kept.

This time, I’ll keep a set of photocopies (or scans) for myself.

This entry was posted in anger, arthritis, coping skills, diagnosis, diagnostic tests, frustration, gut problems, immune suppression, medical records, misdiagnosis, organization, relationships with medical professionals, Remicade, vaccines. Bookmark the permalink.