Category Archives: work

Back from the blackout, with a backlog

The last two months have been interesting. Work has been picking up, and, of course, I got a pile of it dumped on me just as I was heading into my “blackout period” — the week or so during which … Continue reading

Posted in accommodations, biologics, coping skills, disability, exercise, fatigue, frustration, hidden disability, immune suppression, mania, organization, planning ahead, Remicade, side effects, steroids, symptoms, treatment, virus, withdrawal, work | Leave a comment

The devil I know

Over the past few years, I’ve noticed that the number of days I spend too tired to work has increased. I also find that I can work fewer hours per day on average than I used to. This past winter … Continue reading

Posted in arthritis, biologics, fatigue, finances, friendship, frustration, gut problems, immune suppression, mania, mobility impairment, mortality, relationships with family, Remicade, social life, steroids, treatment guidelines, virus, withdrawal, work | 1 Comment

Sick leave: just do it, America!

OK, I live in Canada, but I like the trend toward mandating employers to provide decent sick leave, even for contract workers, that’s gathering momentum in the USA. Several large companies, including Microsoft, are in favour of it. People are … Continue reading

Posted in government policy, relationships with colleagues, virus, work | Leave a comment

Intermittent disabilities fall through the cracks again

Oh boy, am I peeved. A Statscan report on employment among people with disabilities in Canada came out today in honour of the United Nation’s International Day of Persons with Disabilities. The report was picked up by major media under … Continue reading

Posted in accommodations, anger, bias, disability, fatigue, finances, frustration, hidden disability, immune suppression, sexism, statistics, unpredictability, virus, wages, work | Leave a comment

Crohn’s and work: ongoing stress, flexible schedules

It’s been a while, but I’ve found some time in between rushing to get work done, getting sick, dealing with the backlog, etc. to be able to post again. First, some more stats, because I know we all love stats: … Continue reading

Posted in accommodations, disability, finances, relationships with colleagues, relationships with medical professionals, unpredictability, work | Leave a comment

Sleeping at work is good for everybody!

Wow. It’s been a while since I’ve updated everything — sorry. I’ve been very busy alternating being away (conferences, holidays), being sick, and doing a lot of work. Now that I’ve submitted some papers, things are calmer. One of my … Continue reading

Posted in accommodations, disability, fatigue, virus, work | Leave a comment

Frozen peas and instant noodles

Lately, I’ve been very busy with work. Even though I last had Remicade only 3 weeks ago, I’ve been pushing so hard that I’ve had to have 2-hour naps right after breakfast for the past 2 days. Considering how much … Continue reading

Posted in fatigue, food, iron supplements, relationships, social life, work | Leave a comment

10 years of Remicade!

My next dose of Remicade will be the first one in my second decade of Remicade. Whoa. That’s a crazy thing to contemplate. When I was in manic steroid mode last weekend, I thought about going through my records and … Continue reading

Posted in Exceptional Access Program, finances, mania, Remicade, work | 1 Comment

“Sickness presenteeism”

Well, I learned a new term: “sickness presenteeism.” This is, as you have probably guessed, the phenomenon of people going to work sick when they really should have stayed at home. And people who come to work sick not only … Continue reading

Posted in immune suppression, relationships with colleagues, work | Leave a comment

Postdoc land: the middle of somewhere

I meant to post this in June, but so much was happening, and then I got sick, so here it is, more than 3 months late: —– I got a job! Well, I didn’t exactly get a normal job — … Continue reading

Posted in accommodations, bureaucracy, disability, organization, work | Leave a comment