Category Archives: prednisone

Stupid cost-cutting strategies harm patients

The Exceptional Access Program (EAP) provides a valuable service to Ontarians on expensive life-saving medications, such as biologic drugs. Unfortunately, cost-cutting is a fact of life these days, and, of course, as a taxpayer and a (temporarily) unemployed person, I … Continue reading

Posted in anger, bureaucracy, evidence-based medicine, Exceptional Access Program, fatigue, finances, frustration, gut problems, illogical, immune suppression, methotrexate, Ontario Ombudsman, prednisone, reimbursement, Remicade, steroids, symptoms, treatment, ulcers, work | Comments Off on Stupid cost-cutting strategies harm patients

My diagnosis story

I mentioned in an earlier post that it took 4 years between when I first had (what I now know are) Crohn’s symptoms and when I got diagnosed. The on-again, off-again, unpredictable gut and arthritis symptoms I was having during … Continue reading

Posted in arthritis, bias, diagnosis, diagnostic tests, disability, evidence-based medicine, food, frustration, gut problems, hidden disability, immune suppression, mania, misdiagnosis, mobility impairment, prednisone, rash, relationships, relationships with medical professionals, side effects, steroids, symptoms, treatment, ulcers | Comments Off on My diagnosis story

Three weeks post-prednisone

Just checking in after 3 weeks without my 1 mg crutch of 10.5 years. I’m all right — I suppose — but all my Crohn’s symptoms are just that little bit worse since I went off prednisone. I’ve been getting … Continue reading

Posted in arthritis, coping skills, food, gut problems, organization, planning ahead, prednisone, rash, Remicade, steroids, symptoms, ulcers | Comments Off on Three weeks post-prednisone

Prednisone pros and cons

I’ve been somewhat fearful about going off prednisone, but it won’t be all bad. Here is my list of pros and cons about being on a low dose of prednisone: Pros of staying on prednisone: Prednisone, even on low doses, … Continue reading

Posted in allergies, arthritis, Exceptional Access Program, fatigue, prednisone, steroids, withdrawal | Comments Off on Prednisone pros and cons

Day 4 is not so bad

It’s day 4 of no prednisone, a sunny and warm day. I had to sleep with a heating pad last night because of chronic low temperature (me, not the air) and a Benadryl (super-runny nose) but, otherwise, things are all … Continue reading

Posted in allergies, difficulty concentrating, fatigue, hydrocortisone, prednisone, steroids, withdrawal | Comments Off on Day 4 is not so bad

3 days in

This is day 3 of my prednisoneless life. I feel spaced out, sleepy, inarticulate, clumsy, and quite sneezy and stuffy, but not as awful as I thought I would be. Chills, shakes and sweats are mostly gone (I had a … Continue reading

Posted in arthritis, difficulty concentrating, fatigue, prednisone, steroids, withdrawal | Comments Off on 3 days in

I fear the taper

Fast forward more than a decade from the “good times” with the old fridge. . . Why blog? I’m a pretty private person — I’m not even on Facebook, I don’t have a Twitter account, etc. and, maybe even worse, … Continue reading

Posted in anger, arthritis, azathioprine, bureaucracy, difficulty concentrating, evidence-based medicine, Exceptional Access Program, fatigue, finances, frustration, government policy, gut problems, hydrocortisone, illogical, insurance, methotrexate, Ontario Ombudsman, prednisone, reimbursement, Remicade, steroids, symptoms, treatment, treatment guidelines, Trillium Drug Program, withdrawal, work | Comments Off on I fear the taper