Category Archives: Remicade

Back from the blackout, with a backlog

The last two months have been interesting. Work has been picking up, and, of course, I got a pile of it dumped on me just as I was heading into my “blackout period” — the week or so during which … Continue reading

Posted in accommodations, biologics, coping skills, disability, exercise, fatigue, frustration, hidden disability, immune suppression, mania, organization, planning ahead, Remicade, side effects, steroids, symptoms, treatment, virus, withdrawal, work | Leave a comment

The devil I know

Over the past few years, I’ve noticed that the number of days I spend too tired to work has increased. I also find that I can work fewer hours per day on average than I used to. This past winter … Continue reading

Posted in arthritis, biologics, fatigue, finances, friendship, frustration, gut problems, immune suppression, mania, mobility impairment, mortality, relationships with family, Remicade, social life, steroids, treatment guidelines, virus, withdrawal, work | 1 Comment

National pharmacare in the news again

A new study came out in the Canadian Medical Association Journal (CMAJ) this week suggesting that national pharmacare in Canada would save a minimum of $4.2 billion. I’ve written about this topic before, and I hope that this study will … Continue reading

Posted in bureaucracy, finances, government policy, government spending, insurance, public outreach, Remicade, statistics, Twitter | Leave a comment

No measles vaccine for me

So there has been an outbreak of measles in my region. I take public transportation regularly and I’m not a hermit, so there is a real chance that I could be exposed to the measles virus if an infectious person … Continue reading

Posted in diagnostic tests, immune suppression, organization, planning ahead, public outreach, relationships with medical professionals, Remicade, social life, treatment guidelines, virus | Leave a comment

Under pressure

I saw my gastroenterologist the other day for a regular checkup. The first words out of my mouth were that I’ve been doing well lately on Remicade every 6 weeks, much better than I had been doing on it every … Continue reading

Posted in bureaucracy, evidence-based medicine, fatigue, government policy, illogical, reimbursement, relationships with medical professionals, Remicade, treatment | Leave a comment

IV clinic confidential

Some of you who aren’t on intravenous medicine might wonder what it’s like to actually receive Remicade. Here’s a bit of what a typical visit to the clinic tends to be like for me. Pharmacy I go to the clinic … Continue reading

Posted in diagnostic tests, Exceptional Access Program, IV, mania, Remicade, side effects, social life, steroids, symptoms, treatment, Trillium Drug Program | Leave a comment

Naps and graphs

[Click on any graph to enlarge] For the past 4 Remicade cycles, I tracked how many hours I napped per day. Though I know I didn’t manage to record 100% of all naps, my records are reasonably accurate. I dumped … Continue reading

Posted in fatigue, organization, Remicade, social life, statistics, steroids, symptoms, unpredictability, withdrawal | Leave a comment

I’m one of the 12%!

Should I be celebrating?┬áCIHI (the Canadian Institute for Health Information) released a report on spending on prescription drugs in Canada* (PDF) today. The summary page of the report is pretty clear: The majority of public drug spending is for a … Continue reading

Posted in bureaucracy, Exceptional Access Program, fatigue, government policy, government spending, insurance, Ontario Ombudsman, reimbursement, Remicade, statistics, treatment | Leave a comment

10 years of Remicade!

My next dose of Remicade will be the first one in my second decade of Remicade. Whoa. That’s a crazy thing to contemplate. When I was in manic steroid mode last weekend, I thought about going through my records and … Continue reading

Posted in Exceptional Access Program, finances, mania, Remicade, work | 1 Comment

Flu shot timing

Flu shot season is already here. In a few days, once I get the logistics worked out, I’m going to be bugging everyone I work with to get their FREE flu shots ASAP so that herd immunity can help protect … Continue reading

Posted in evidence-based medicine, immune suppression, mania, organization, planning ahead, Remicade, steroids, virus | Leave a comment