Category Archives: treatment

Sleeping on ice vs. my “personal fear factor”

A few times in the last few weeks I had to sleep on ice packs for sacroiliac inflammation — that’s inflammation of the joints where the spine and pelvis meet. This kind of inflammation is a known complication of Crohn’s, … Continue reading

Posted in allergies, arthritis, diagnostic tests, food, mobility impairment, social life, symptoms, treatment | 1 Comment

The devil I know, part II

About a year ago, I wrote about how Remicade is the devil I know — the immune suppression and fatigue can be very frustrating on their own, and the steroid rollercoaster I have every 6 weeks is seriously annoying, but there other … Continue reading

Posted in allergies, Benadryl, difficulty concentrating, fatigue, organization, partners, planning ahead, rash, Remicade, side effects, steroids, symptoms, treatment, unpredictability, withdrawal | Leave a comment

Sometimes I’m OK!

I went on a holiday a few weeks ago. It was the first actual holiday I’d gone on in years. I’m lucky to have a boss who understands that a) my horrible attendance isn’t something I have control over, b) everyone … Continue reading

Posted in fatigue, immune suppression, partners, relationships, relationships with colleagues, Remicade, social life, steroids, unpredictability, virus, work | Leave a comment

Crohn’s and psoriasis versus virus: nasal edition

Long time no see again. Here I am, off sick again. Last week I worked a total of about 7 hours. This week I’ve done about 1 hour’s work. I am annoyed. Since the beginning of the year, I’ve caught … Continue reading

Posted in fatigue, frustration, immune suppression, psoriasis, Remicade, symptoms, ulcers, virus, work | Leave a comment

Feeling anxious?

Some research has just come out of the University of Toronto showing that people with Crohn’s or colitis are two times more likely to have generalized anxiety disorder as people who don’t have inflammatory bowel disease. Here’s the link to … Continue reading

Posted in Crohn's research, disability, statistics, symptoms, treatment | Leave a comment

Back from the blackout, with a backlog

The last two months have been interesting. Work has been picking up, and, of course, I got a pile of it dumped on me just as I was heading into my “blackout period” — the week or so during which … Continue reading

Posted in accommodations, biologics, coping skills, disability, exercise, fatigue, frustration, hidden disability, immune suppression, mania, organization, planning ahead, Remicade, side effects, steroids, symptoms, treatment, virus, withdrawal, work | Leave a comment

The devil I know

Over the past few years, I’ve noticed that the number of days I spend too tired to work has increased. I also find that I can work fewer hours per day on average than I used to. This past winter … Continue reading

Posted in arthritis, biologics, fatigue, finances, friendship, frustration, gut problems, immune suppression, mania, mobility impairment, mortality, relationships with family, Remicade, social life, steroids, treatment guidelines, virus, withdrawal, work | 1 Comment

Welcome to my normal

I was at a family event this past weekend while I was having steroid withdrawal. There’s nothing quite like looking dazed and then falling asleep on the floor in front of relatives you haven’t seen in a year — and … Continue reading

Posted in coping skills, difficulty concentrating, disability, fatigue, hidden disability, organization, planning ahead, relationships, relationships with family, side effects, steroids, symptoms, withdrawal | 1 Comment

National pharmacare in the news again

A new study came out in the Canadian Medical Association Journal (CMAJ) this week suggesting that national pharmacare in Canada would save a minimum of $4.2 billion. I’ve written about this topic before, and I hope that this study will … Continue reading

Posted in bureaucracy, finances, government policy, government spending, insurance, public outreach, Remicade, statistics, Twitter | Leave a comment

No measles vaccine for me

So there has been an outbreak of measles in my region. I take public transportation regularly and I’m not a hermit, so there is a real chance that I could be exposed to the measles virus if an infectious person … Continue reading

Posted in diagnostic tests, immune suppression, organization, planning ahead, public outreach, relationships with medical professionals, Remicade, social life, treatment guidelines, virus | Leave a comment