Category Archives: unpredictability

Just try harder

One of the things I hate very much about having a chronic/intermittent illness is that I can’t predict when I’ll be well enough to do the things I’d said I’d do or that I’d like to do, and when I’ll … Continue reading

Posted in accommodations, bias, coping skills, difficulty concentrating, disability, fatigue, food, friendship, hidden disability, immune suppression, organization, partners, planning ahead, relationships, relationships with colleagues, relationships with family, relationships with medical professionals, social life, unpredictability, work | Leave a comment

Tired and frustrated

I am tired. I had Remicade and my steroids last week; usually steroid withdrawal is over by now. But yesterday I was completely in withdrawal mode: unable to concentrate, light-headed, physically tired, clumsy. Today I just want to crawl back … Continue reading

Posted in coping skills, disability, fatigue, frustration, hidden disability, organization, relationships with medical professionals, steroids, unpredictability, withdrawal, work | Leave a comment

Disability Tax Credit — falling through the cracks again

Canada’s Disability Tax Credit is supposed to help lower the tax burden on “persons with disabilities or their supporting persons.” Registered disability savings plans (RDSPs) are also available to people who qualify for the tax credit to help fund the long-term care … Continue reading

Posted in bureaucracy, disability, fatigue, finances, government policy, immune suppression, symptoms, taxes, unpredictability, virus, work | Leave a comment

The devil I know, part II

About a year ago, I wrote about how Remicade is the devil I know — the immune suppression and fatigue can be very frustrating on their own, and the steroid rollercoaster I have every 6 weeks is seriously annoying, but there other … Continue reading

Posted in allergies, Benadryl, difficulty concentrating, fatigue, organization, partners, planning ahead, rash, Remicade, side effects, steroids, symptoms, treatment, unpredictability, withdrawal | Leave a comment

Sometimes I’m OK!

I went on a holiday a few weeks ago. It was the first actual holiday I’d gone on in years. I’m lucky to have a boss who understands that a) my horrible attendance isn’t something I have control over, b) everyone … Continue reading

Posted in fatigue, immune suppression, partners, relationships, relationships with colleagues, Remicade, social life, steroids, unpredictability, virus, work | Leave a comment

Intermittent disabilities fall through the cracks again

Oh boy, am I peeved. A Statscan report on employment among people with disabilities in Canada came out today in honour of the United Nation’s International Day of Persons with Disabilities. The report was picked up by major media under … Continue reading

Posted in accommodations, anger, bias, disability, fatigue, finances, frustration, hidden disability, immune suppression, sexism, statistics, unpredictability, virus, wages, work | Leave a comment

Crohn’s and work: ongoing stress, flexible schedules

It’s been a while, but I’ve found some time in between rushing to get work done, getting sick, dealing with the backlog, etc. to be able to post again. First, some more stats, because I know we all love stats: … Continue reading

Posted in accommodations, disability, finances, relationships with colleagues, relationships with medical professionals, unpredictability, work | Leave a comment

Naps and graphs

[Click on any graph to enlarge] For the past 4 Remicade cycles, I tracked how many hours I napped per day. Though I know I didn’t manage to record 100% of all naps, my records are reasonably accurate. I dumped … Continue reading

Posted in fatigue, organization, Remicade, social life, statistics, steroids, symptoms, unpredictability, withdrawal | Leave a comment

Canada’s Convention on the Rights of Persons with Disabilities Report

Canada’s first report on the Convention on the Rights of Persons with Disabilities was released today. I looked through it and I can’t say that there’s much new in it at all. It cites Statscan’s 2006 PALS data on disabilities, … Continue reading

Posted in bureaucracy, disability, finances, frustration, government policy, hidden disability, illogical, statistics, unpredictability | Leave a comment

What, don’t you know who I am? I’m an irregular here!

One of the most annoying things about Crohn’s (other than the fatigue, flare-ups and susceptibility to viruses . . .) is the relative randomness of it all. I just don’t know when I’m going to be feeling well enough to … Continue reading

Posted in disability, finances, organization, partners, relationships, social life, unpredictability | Leave a comment