Category Archives: ulcers

Worried again

So I had Remicade less than 2 weeks ago, but, since then, I’ve still missed work 50% of the time because of fatigue, and still have ulcers up my nose and psoriasis in my ears, etc. It’sĀ almost as if I … Continue reading

Posted in biologics, difficulty concentrating, disability, fatigue, frustration, psoriasis, Remicade, treatment, ulcers, work | Leave a comment

Bring on the dairy!

A number of people, even doctors, have expressed surprise that I don’t have problems digesting dairy products. There is a common belief that people with Crohn’s are lactose intolerant. Lactose is broken down by lactase, and lactase is produced in … Continue reading

Posted in food, lactose intolerance, ulcers | Leave a comment

Scary times

Hi everybody. I haven’t been posting for a while because I’ve been sick a lot. Some of the time I was sick from colds being passed around because of the new school year, but some of it was Crohn’s. Twice … Continue reading

Posted in biologics, coping skills, diagnostic tests, fatigue, food, frustration, gut problems, immune suppression, organization, planning ahead, relationships with medical professionals, Remicade, treatment, ulcers, virus, work | Leave a comment

Crohn’s and psoriasis versus virus: nasal edition

Long time no see again. Here I am, off sick again. Last week I worked a total of about 7 hours. This week I’ve done about 1 hour’s work. I am annoyed. Since the beginning of the year, I’ve caught … Continue reading

Posted in fatigue, frustration, immune suppression, psoriasis, Remicade, symptoms, ulcers, virus, work | Leave a comment

Stupid cost-cutting strategies harm patients

The Exceptional Access Program (EAP) provides a valuable service to Ontarians on expensive life-saving medications, such as biologic drugs. Unfortunately, cost-cutting is a fact of life these days, and, of course, as a taxpayer and a (temporarily) unemployed person, I … Continue reading

Posted in anger, bureaucracy, evidence-based medicine, Exceptional Access Program, fatigue, finances, frustration, gut problems, illogical, immune suppression, methotrexate, Ontario Ombudsman, prednisone, reimbursement, Remicade, steroids, symptoms, treatment, ulcers, work | Comments Off on Stupid cost-cutting strategies harm patients

My diagnosis story

I mentioned in an earlier post that it took 4 years between when I first had (what I now know are) Crohn’s symptoms and when I got diagnosed. The on-again, off-again, unpredictable gut and arthritis symptoms I was having during … Continue reading

Posted in arthritis, bias, diagnosis, diagnostic tests, disability, evidence-based medicine, food, frustration, gut problems, hidden disability, immune suppression, mania, misdiagnosis, mobility impairment, prednisone, rash, relationships, relationships with medical professionals, side effects, steroids, symptoms, treatment, ulcers | Comments Off on My diagnosis story

Three weeks post-prednisone

Just checking in after 3 weeks without my 1 mg crutch of 10.5 years. I’m all right — I suppose — but all my Crohn’s symptoms are just that little bit worse since I went off prednisone. I’ve been getting … Continue reading

Posted in arthritis, coping skills, food, gut problems, organization, planning ahead, prednisone, rash, Remicade, steroids, symptoms, ulcers | Comments Off on Three weeks post-prednisone