Category Archives: difficulty concentrating

Shingles sucks.

About two weeks ago was mid-way through my latest Remicade cycle, so the ideal time to get the flu shot. I figured I’d feel mildly gross for two days or so, and be back at work by Monday. That did … Continue reading

Posted in coping skills, diagnosis, difficulty concentrating, fatigue, frustration, immune suppression, mania, mobility impairment, rash, Remicade, side effects, symptoms, treatment, vaccines, virus, wages, work | Leave a comment

50 shades of fatigue?

Sometimes I find it hard to explain the fatigue I experience to other people so that they can understand why I have so much trouble working consistently. It’s not just being tired, like feeling tired after a long day. The … Continue reading

Posted in difficulty concentrating, fatigue, relationships with colleagues, relationships with medical professionals | Leave a comment

Worried again

So I had Remicade less than 2 weeks ago, but, since then, I’ve still missed work 50% of the time because of fatigue, and still have ulcers up my nose and psoriasis in my ears, etc. It’s almost as if I … Continue reading

Posted in biologics, difficulty concentrating, disability, fatigue, frustration, psoriasis, Remicade, treatment, ulcers, work | Leave a comment

Just try harder

One of the things I hate very much about having a chronic/intermittent illness is that I can’t predict when I’ll be well enough to do the things I’d said I’d do or that I’d like to do, and when I’ll … Continue reading

Posted in accommodations, bias, coping skills, difficulty concentrating, disability, fatigue, food, friendship, hidden disability, immune suppression, organization, partners, planning ahead, relationships, relationships with colleagues, relationships with family, relationships with medical professionals, social life, unpredictability, work | Leave a comment

The devil I know, part II

About a year ago, I wrote about how Remicade is the devil I know — the immune suppression and fatigue can be very frustrating on their own, and the steroid rollercoaster I have every 6 weeks is seriously annoying, but there other … Continue reading

Posted in allergies, Benadryl, difficulty concentrating, fatigue, organization, partners, planning ahead, rash, Remicade, side effects, steroids, symptoms, treatment, unpredictability, withdrawal | Leave a comment

Welcome to my normal

I was at a family event this past weekend while I was having steroid withdrawal. There’s nothing quite like looking dazed and then falling asleep on the floor in front of relatives you haven’t seen in a year — and … Continue reading

Posted in coping skills, difficulty concentrating, disability, fatigue, hidden disability, organization, planning ahead, relationships, relationships with family, side effects, steroids, symptoms, withdrawal | 1 Comment

Erratic but optimistic

Ugh, sorry for the erratic postings. I got pretty sick in July — food poisoning that turned into a Crohn’s flare. It was the sickest I’ve been in 4 years. I had to be rehydrated in the hospital and I … Continue reading

Posted in diagnosis, difficulty concentrating, fatigue, gut problems, iron supplements, work | Leave a comment

Day 4 is not so bad

It’s day 4 of no prednisone, a sunny and warm day. I had to sleep with a heating pad last night because of chronic low temperature (me, not the air) and a Benadryl (super-runny nose) but, otherwise, things are all … Continue reading

Posted in allergies, difficulty concentrating, fatigue, hydrocortisone, prednisone, steroids, withdrawal | Comments Off on Day 4 is not so bad

3 days in

This is day 3 of my prednisoneless life. I feel spaced out, sleepy, inarticulate, clumsy, and quite sneezy and stuffy, but not as awful as I thought I would be. Chills, shakes and sweats are mostly gone (I had a … Continue reading

Posted in arthritis, difficulty concentrating, fatigue, prednisone, steroids, withdrawal | Comments Off on 3 days in

I fear the taper

Fast forward more than a decade from the “good times” with the old fridge. . . Why blog? I’m a pretty private person — I’m not even on Facebook, I don’t have a Twitter account, etc. and, maybe even worse, … Continue reading

Posted in anger, arthritis, azathioprine, bureaucracy, difficulty concentrating, evidence-based medicine, Exceptional Access Program, fatigue, finances, frustration, government policy, gut problems, hydrocortisone, illogical, insurance, methotrexate, Ontario Ombudsman, prednisone, reimbursement, Remicade, steroids, symptoms, treatment, treatment guidelines, Trillium Drug Program, withdrawal, work | Comments Off on I fear the taper