Category Archives: gut problems

Medical records: the lost years

There is an outbreak of mumps in my city, so I figured it’s time to check when I last got vaccinated against this disease. I called my doctor’s office to find out what they had in my records about all … Continue reading

Posted in anger, arthritis, coping skills, diagnosis, diagnostic tests, frustration, gut problems, immune suppression, medical records, misdiagnosis, organization, relationships with medical professionals, Remicade, vaccines | Leave a comment

Bring on the dairy!

A number of people, even doctors, have expressed surprise that I don’t have problems digesting dairy products. There is a common belief that people with Crohn’s are lactose intolerant. Lactose is broken down by lactase, and lactase is produced in … Continue reading

Posted in food, lactose intolerance, ulcers | Leave a comment

Scary times

Hi everybody. I haven’t been posting for a while because I’ve been sick a lot. Some of the time I was sick from colds being passed around because of the new school year, but some of it was Crohn’s. Twice … Continue reading

Posted in biologics, coping skills, diagnostic tests, fatigue, food, frustration, gut problems, immune suppression, organization, planning ahead, relationships with medical professionals, Remicade, treatment, ulcers, virus, work | Leave a comment

Fatigue

I was up for several hours last night with gut problems so I’m a little out of sorts today. This got me thinking about how much I’ve been able to work in the last while. I made this chart showing … Continue reading

Posted in Crohn's research, disability, fatigue, gut problems, Remicade, symptoms, treatment, work | Leave a comment

The devil I know

Over the past few years, I’ve noticed that the number of days I spend too tired to work has increased. I also find that I can work fewer hours per day on average than I used to. This past winter … Continue reading

Posted in arthritis, biologics, fatigue, finances, friendship, frustration, gut problems, immune suppression, mania, mobility impairment, mortality, relationships with family, Remicade, social life, steroids, treatment guidelines, virus, withdrawal, work | 1 Comment

On the UP and up

Last week, while sick with another lovely virus, I ordered a Jawbone UP wristband. I have noticed 2 interesting trends so far: 1. When I can’t breathe because of a super-runny nose and/or gut problems, the wristband is great at … Continue reading

Posted in exercise, fatigue, gut problems, immune suppression, virus | Leave a comment

Toilet talk

I’m interested in linguistics and communication in general, so it makes sense that I spend a certain amount of time thinking about the kinds of things that Crohn’s makes it imperative to discuss. At the same time, I didn’t grow … Continue reading

Posted in coping skills, fatigue, friendship, gut problems, partners, relationships, relationships with colleagues, relationships with medical professionals | Leave a comment

Erratic but optimistic

Ugh, sorry for the erratic postings. I got pretty sick in July — food poisoning that turned into a Crohn’s flare. It was the sickest I’ve been in 4 years. I had to be rehydrated in the hospital and I … Continue reading

Posted in diagnosis, difficulty concentrating, fatigue, gut problems, iron supplements, work | Leave a comment

New stats!

The Crohn’s and Colitis Foundation of Canada just released a report on the Impact of Inflammatory Disease in Canada. Pages 47-49 in particular, which deal with the costs of medications and their burden for patients with Crohn’s, and pages 53-57 … Continue reading

Posted in accommodations, disability, fatigue, finances, government policy, gut problems, insurance, relationships with colleagues, relationships with medical professionals, Remicade, treatment, work | Comments Off on New stats!

Stupid cost-cutting strategies harm patients

The Exceptional Access Program (EAP) provides a valuable service to Ontarians on expensive life-saving medications, such as biologic drugs. Unfortunately, cost-cutting is a fact of life these days, and, of course, as a taxpayer and a (temporarily) unemployed person, I … Continue reading

Posted in anger, bureaucracy, evidence-based medicine, Exceptional Access Program, fatigue, finances, frustration, gut problems, illogical, immune suppression, methotrexate, Ontario Ombudsman, prednisone, reimbursement, Remicade, steroids, symptoms, treatment, ulcers, work | Comments Off on Stupid cost-cutting strategies harm patients