Category Archives: fatigue

Crohn’s and psoriasis versus virus: nasal edition

Long time no see again. Here I am, off sick again. Last week I worked a total of about 7 hours. This week I’ve done about 1 hour’s work. I am annoyed. Since the beginning of the year, I’ve caught … Continue reading

Posted in fatigue, frustration, immune suppression, psoriasis, Remicade, symptoms, ulcers, virus, work | Leave a comment

Back from the blackout, with a backlog

The last two months have been interesting. Work has been picking up, and, of course, I got a pile of it dumped on me just as I was heading into my “blackout period” — the week or so during which … Continue reading

Posted in accommodations, biologics, coping skills, disability, exercise, fatigue, frustration, hidden disability, immune suppression, mania, organization, planning ahead, Remicade, side effects, steroids, symptoms, treatment, virus, withdrawal, work | Leave a comment

The devil I know

Over the past few years, I’ve noticed that the number of days I spend too tired to work has increased. I also find that I can work fewer hours per day on average than I used to. This past winter … Continue reading

Posted in arthritis, biologics, fatigue, finances, friendship, frustration, gut problems, immune suppression, mania, mobility impairment, mortality, relationships with family, Remicade, social life, steroids, treatment guidelines, virus, withdrawal, work | 1 Comment

Welcome to my normal

I was at a family event this past weekend while I was having steroid withdrawal. There’s nothing quite like looking dazed and then falling asleep on the floor in front of relatives you haven’t seen in a year — and … Continue reading

Posted in coping skills, difficulty concentrating, disability, fatigue, hidden disability, organization, planning ahead, relationships, relationships with family, side effects, steroids, symptoms, withdrawal | 1 Comment

Intermittent disabilities fall through the cracks again

Oh boy, am I peeved. A Statscan report on employment among people with disabilities in Canada came out today in honour of the United Nation’s International Day of Persons with Disabilities. The report was picked up by major media under … Continue reading

Posted in accommodations, anger, bias, disability, fatigue, finances, frustration, hidden disability, immune suppression, sexism, statistics, unpredictability, virus, wages, work | Leave a comment

Under pressure

I saw my gastroenterologist the other day for a regular checkup. The first words out of my mouth were that I’ve been doing well lately on Remicade every 6 weeks, much better than I had been doing on it every … Continue reading

Posted in bureaucracy, evidence-based medicine, fatigue, government policy, illogical, reimbursement, relationships with medical professionals, Remicade, treatment | Leave a comment

Kids and colds

Ugh. It’s been a week and I’m still too sick with bronchitis/sinusitis to work. I know exactly where I got it from, too. Two weeks ago a friend of mine wanted to socialize. That would have been great, but her … Continue reading

Posted in disability, fatigue, friendship, frustration, immune suppression, relationships, social life, steroids, symptoms, virus | Leave a comment

Sleeping at work is good for everybody!

Wow. It’s been a while since I’ve updated everything — sorry. I’ve been very busy alternating being away (conferences, holidays), being sick, and doing a lot of work. Now that I’ve submitted some papers, things are calmer. One of my … Continue reading

Posted in accommodations, disability, fatigue, virus, work | Leave a comment

On the UP and up

Last week, while sick with another lovely virus, I ordered a Jawbone UP wristband. I have noticed 2 interesting trends so far: 1. When I can’t breathe because of a super-runny nose and/or gut problems, the wristband is great at … Continue reading

Posted in exercise, fatigue, gut problems, immune suppression, virus | Leave a comment

Naps and graphs

[Click on any graph to enlarge] For the past 4 Remicade cycles, I tracked how many hours I napped per day. Though I know I didn’t manage to record 100% of all naps, my records are reasonably accurate. I dumped … Continue reading

Posted in fatigue, organization, Remicade, social life, statistics, steroids, symptoms, unpredictability, withdrawal | Leave a comment