Category Archives: side effects

The devil I know, part II

About a year ago, I wrote about how Remicade is the devil I know¬†— the¬†immune suppression and fatigue can be very frustrating on their own, and the steroid rollercoaster I have every 6 weeks is seriously annoying, but there other … Continue reading

Posted in allergies, Benadryl, difficulty concentrating, fatigue, organization, partners, planning ahead, rash, Remicade, side effects, steroids, symptoms, treatment, unpredictability, withdrawal | Leave a comment

Back from the blackout, with a backlog

The last two months have been interesting. Work has been picking up, and, of course, I got a pile of it dumped on me just as I was heading into my “blackout period” — the week or so during which … Continue reading

Posted in accommodations, biologics, coping skills, disability, exercise, fatigue, frustration, hidden disability, immune suppression, mania, organization, planning ahead, Remicade, side effects, steroids, symptoms, treatment, virus, withdrawal, work | Leave a comment

The devil I know

Over the past few years, I’ve noticed that the number of days I spend too tired to work has increased. I also find that I can work fewer hours per day on average than I used to. This past winter … Continue reading

Posted in arthritis, biologics, fatigue, finances, friendship, frustration, gut problems, immune suppression, mania, mobility impairment, mortality, relationships with family, Remicade, social life, steroids, treatment guidelines, virus, withdrawal, work | 1 Comment

Welcome to my normal

I was at a family event this past weekend while I was having steroid withdrawal. There’s nothing quite like looking dazed and then falling asleep on the floor in front of relatives you haven’t seen in a year — and … Continue reading

Posted in coping skills, difficulty concentrating, disability, fatigue, hidden disability, organization, planning ahead, relationships, relationships with family, side effects, steroids, symptoms, withdrawal | 1 Comment

IV clinic confidential

Some of you who aren’t on intravenous medicine might wonder what it’s like to actually receive Remicade. Here’s a bit of what a typical visit to the clinic tends to be like for me. Pharmacy I go to the clinic … Continue reading

Posted in diagnostic tests, Exceptional Access Program, IV, mania, Remicade, side effects, social life, steroids, symptoms, treatment, Trillium Drug Program | Leave a comment

10 years of Remicade!

My next dose of Remicade will be the first one in my second decade of Remicade. Whoa. That’s a crazy thing to contemplate. When I was in manic steroid mode last weekend, I thought about going through my records and … Continue reading

Posted in Exceptional Access Program, finances, mania, Remicade, work | 1 Comment

Flu shot timing

Flu shot season is already here. In a few days, once I get the logistics worked out, I’m going to be bugging everyone I work with to get their FREE flu shots ASAP so that herd immunity can help protect … Continue reading

Posted in evidence-based medicine, immune suppression, mania, organization, planning ahead, Remicade, steroids, virus | Leave a comment

I’m on Twitter

@SickOfCrohns Tweeting on steroids at nearly 3 am! Let’s see how this works out. . .

Posted in mania, public outreach, steroids, Twitter | Leave a comment

My diagnosis story

I mentioned in an earlier post that it took 4 years between when I first had (what I now know are) Crohn’s symptoms and when I got diagnosed. The on-again, off-again, unpredictable gut and arthritis symptoms I was having during … Continue reading

Posted in arthritis, bias, diagnosis, diagnostic tests, disability, evidence-based medicine, food, frustration, gut problems, hidden disability, immune suppression, mania, misdiagnosis, mobility impairment, prednisone, rash, relationships, relationships with medical professionals, side effects, steroids, symptoms, treatment, ulcers | Comments Off on My diagnosis story

This is me on steroids

So, about prednisone. There are probably thousands of blogs and other things out there explaining how prednisone makes people go “crazy.” (1.2 million hits for prednisone + crazy alone). It certainly has effects on personality. I’ve heard that some people … Continue reading

Posted in mania, side effects, withdrawal, work | Comments Off on This is me on steroids