Category Archives: partners

What? I’m not sick?

I should probably be knocking wood here, but I haven’t been sick for almost 2 months, which must be some kind of record. Unfortunately, my partner has been sick with a virus for almost two weeks now. We haven’t been … Continue reading

Posted in immune suppression, partners, relationships, virus | Leave a comment

Just try harder

One of the things I hate very much about having a chronic/intermittent illness is that I can’t predict when I’ll be well enough to do the things I’d said I’d do or that I’d like to do, and when I’ll … Continue reading

Posted in accommodations, bias, coping skills, difficulty concentrating, disability, fatigue, food, friendship, hidden disability, immune suppression, organization, partners, planning ahead, relationships, relationships with colleagues, relationships with family, relationships with medical professionals, social life, unpredictability, work | Leave a comment

The devil I know, part II

About a year ago, I wrote about how Remicade is the devil I know — the immune suppression and fatigue can be very frustrating on their own, and the steroid rollercoaster I have every 6 weeks is seriously annoying, but there other … Continue reading

Posted in allergies, Benadryl, difficulty concentrating, fatigue, organization, partners, planning ahead, rash, Remicade, side effects, steroids, symptoms, treatment, unpredictability, withdrawal | Leave a comment

Sometimes I’m OK!

I went on a holiday a few weeks ago. It was the first actual holiday I’d gone on in years. I’m lucky to have a boss who understands that a) my horrible attendance isn’t something I have control over, b) everyone … Continue reading

Posted in fatigue, immune suppression, partners, relationships, relationships with colleagues, Remicade, social life, steroids, unpredictability, virus, work | Leave a comment

Mid-moult

I’m marginally more functional than yesterday. The steroid withdrawal this cycle has been rough. I generally spend at least part of Sundays preparing food for the week, but there is no way I have the energy to cook today. Instead, … Continue reading

Posted in fatigue, friendship, partners, relationships, social life, steroids, symptoms, withdrawal | Leave a comment

Toilet talk

I’m interested in linguistics and communication in general, so it makes sense that I spend a certain amount of time thinking about the kinds of things that Crohn’s makes it imperative to discuss. At the same time, I didn’t grow … Continue reading

Posted in coping skills, fatigue, friendship, gut problems, partners, relationships, relationships with colleagues, relationships with medical professionals | Leave a comment

What, don’t you know who I am? I’m an irregular here!

One of the most annoying things about Crohn’s (other than the fatigue, flare-ups and susceptibility to viruses . . .) is the relative randomness of it all. I just don’t know when I’m going to be feeling well enough to … Continue reading

Posted in disability, finances, organization, partners, relationships, social life, unpredictability | Leave a comment

Mortality

A few months ago, when I started my business, I joined a professional association that offered what I thought was a group insurance plan. I felt like I’d struck gold! A group insurance plan would allow me to qualify for … Continue reading

Posted in diagnosis, disability, finances, friendship, insurance, mortality, partners, planning ahead, relationships, Remicade, steroids, withdrawal, work | Leave a comment