Category Archives: friendship

Just try harder

One of the things I hate very much about having a chronic/intermittent illness is that I can’t predict when I’ll be well enough to do the things I’d said I’d do or that I’d like to do, and when I’ll … Continue reading

Posted in accommodations, bias, coping skills, difficulty concentrating, disability, fatigue, food, friendship, hidden disability, immune suppression, organization, partners, planning ahead, relationships, relationships with colleagues, relationships with family, relationships with medical professionals, social life, unpredictability, work | Leave a comment

Appropriate cards for chronic illnesses

I just learned about these empathy cards for patients with chronic illnesses. Here are my two favourite cards: and

Posted in friendship, relationships, relationships with family | Leave a comment

The devil I know

Over the past few years, I’ve noticed that the number of days I spend too tired to work has increased. I also find that I can work fewer hours per day on average than I used to. This past winter … Continue reading

Posted in arthritis, biologics, fatigue, finances, friendship, frustration, gut problems, immune suppression, mania, mobility impairment, mortality, relationships with family, Remicade, social life, steroids, treatment guidelines, virus, withdrawal, work | 1 Comment

Kids and colds

Ugh. It’s been a week and I’m still too sick with bronchitis/sinusitis to work. I know exactly where I got it from, too. Two weeks ago a friend of mine wanted to socialize. That would have been great, but her … Continue reading

Posted in disability, fatigue, friendship, frustration, immune suppression, relationships, social life, steroids, symptoms, virus | Leave a comment

Mid-moult

I’m marginally more functional than yesterday. The steroid withdrawal this cycle has been rough. I generally spend at least part of Sundays preparing food for the week, but there is no way I have the energy to cook today. Instead, … Continue reading

Posted in fatigue, friendship, partners, relationships, social life, steroids, symptoms, withdrawal | Leave a comment

Toilet talk

I’m interested in linguistics and communication in general, so it makes sense that I spend a certain amount of time thinking about the kinds of things that Crohn’s makes it imperative to discuss. At the same time, I didn’t grow … Continue reading

Posted in coping skills, fatigue, friendship, gut problems, partners, relationships, relationships with colleagues, relationships with medical professionals | Leave a comment

Mortality

A few months ago, when I started my business, I joined a professional association that offered what I thought was a group insurance plan. I felt like I’d struck gold! A group insurance plan would allow me to qualify for … Continue reading

Posted in diagnosis, disability, finances, friendship, insurance, mortality, partners, planning ahead, relationships, Remicade, steroids, withdrawal, work | Leave a comment