Category Archives: relationships

Here we go again: another EAP backlog

The last week has been fairly trying. It started off last week with me eating something that would normally not be a problem, but that obviously was not OK for me to eat so far into the treatment cycle: vegetarian … Continue reading

Posted in backlog, biologics, bureaucracy, disability, Exceptional Access Program, fatigue, finances, food, frustration, gut problems, Ontario Ombudsman, reimbursement, relationships with colleagues, Remicade | Leave a comment

Scraping by

The last two treatment cycles have been weird. Two cycles ago was great. I had a lot of energy and didn’t feel sick for most of the time. Work went very well. I also had the energy to do some … Continue reading

Posted in allergies, exercise, fatigue, food, frustration, gut problems, psoriasis, social life, treatment, virus, work | Leave a comment

50 shades of fatigue?

Sometimes I find it hard to explain the fatigue I experience to other people so that they can understand why I have so much trouble working consistently. It’s not just being tired, like feeling tired after a long day. The … Continue reading

Posted in difficulty concentrating, fatigue, relationships with colleagues, relationships with medical professionals | Leave a comment

Medical records: the plot thickens

In the previous post, I described how I had called my doctor’s office to ask someone to look through my chart to find out when I was last vaccinated for mumps and whether I am immune to mumps; a week … Continue reading

Posted in bureaucracy, medical records, relationships with medical professionals | Leave a comment

Medical records: the lost years

There is an outbreak of mumps in my city, so I figured it’s time to check when I last got vaccinated against this disease. I called my doctor’s office to find out what they had in my records about all … Continue reading

Posted in anger, arthritis, coping skills, diagnosis, diagnostic tests, frustration, gut problems, immune suppression, medical records, misdiagnosis, organization, relationships with medical professionals, Remicade, vaccines | Leave a comment

What? I’m not sick?

I should probably be knocking wood here, but I haven’t been sick for almost 2 months, which must be some kind of record. Unfortunately, my partner has been sick with a virus for almost two weeks now. We haven’t been … Continue reading

Posted in immune suppression, partners, relationships, virus | Leave a comment

Just try harder

One of the things I hate very much about having a chronic/intermittent illness is that I can’t predict when I’ll be well enough to do the things I’d said I’d do or that I’d like to do, and when I’ll … Continue reading

Posted in accommodations, bias, coping skills, difficulty concentrating, disability, fatigue, food, friendship, hidden disability, immune suppression, organization, partners, planning ahead, relationships, relationships with colleagues, relationships with family, relationships with medical professionals, social life, unpredictability, work | Leave a comment

Colonoscopy allergy mystery

In┬áJune, I posted about being sent for drug allergy testing to see if I could use anti-inflammatory painkillers that I’ve had allergic reactions to before. I went for the testing about a month ago. First off, the doctors at the … Continue reading

Posted in allergies, colonoscopy, diagnostic tests, hidden disability, organization, planning ahead, relationships with medical professionals | Leave a comment

Scary times

Hi everybody. I haven’t been posting for a while because I’ve been sick a lot. Some of the time I was sick from colds being passed around because of the new school year, but some of it was Crohn’s. Twice … Continue reading

Posted in biologics, coping skills, diagnostic tests, fatigue, food, frustration, gut problems, immune suppression, organization, planning ahead, relationships with medical professionals, Remicade, treatment, ulcers, virus, work | Leave a comment

Tired and frustrated

I am tired. I had Remicade and my steroids last week; usually steroid withdrawal is over by now. But yesterday I was completely in withdrawal mode: unable to concentrate, light-headed, physically tired, clumsy. Today I just want to crawl back … Continue reading

Posted in coping skills, disability, fatigue, frustration, hidden disability, organization, relationships with medical professionals, steroids, unpredictability, withdrawal, work | Leave a comment