Category Archives: illogical

Under pressure

I saw my gastroenterologist the other day for a regular checkup. The first words out of my mouth were that I’ve been doing well lately on Remicade every 6 weeks, much better than I had been doing on it every … Continue reading

Posted in bureaucracy, evidence-based medicine, fatigue, government policy, illogical, reimbursement, relationships with medical professionals, Remicade, treatment | Leave a comment

National pharmacare in Canada creeps forward (I hope)

Earlier this month, the Canadian Press published an article about the current state of plans for a national pharmacare program in Canada based on a report by Dr. Marc-André Gagnon (“A Roadmap to A Rational Pharmacare Policy in Canada”). The way things stand … Continue reading

Posted in bureaucracy, Exceptional Access Program, government policy, government spending, illogical, insurance, reimbursement, statistics, treatment, Trillium Drug Program | 1 Comment

Canada’s Convention on the Rights of Persons with Disabilities Report

Canada’s first report on the Convention on the Rights of Persons with Disabilities was released today. I looked through it and I can’t say that there’s much new in it at all. It cites Statscan’s 2006 PALS data on disabilities, … Continue reading

Posted in bureaucracy, disability, finances, frustration, government policy, hidden disability, illogical, statistics, unpredictability | Leave a comment

Remicade is not new or experimental, so why does Ontario treat it as if it were?

Why is Ontario’s Provincial Parliament so out of touch about biologic medications? These medications — especially Remicade (infliximab) — account for a significant and fast-growing chunk of Ontario’s health expenditures*, so a rational discussion of how to balance their costs … Continue reading

Posted in anger, bureaucracy, evidence-based medicine, Exceptional Access Program, finances, frustration, government policy, illogical, reimbursement, Remicade, treatment guidelines | Leave a comment

Service Canada contradictions

Had a rather frustrating talk with someone at EI/Service Canada the other day. (Yes, I now qualify for and am receiving employment insurance (EI). Even though I’m self-employed, I’m also looking for a more permanent position because I don’t have … Continue reading

Posted in bureaucracy, disability, frustration, government policy, illogical, work | Leave a comment

I’m in business. . . part of the time

A lot has happened since I last posted. On the bad side, I’ve had a whole whack of viruses and also an allergic reactions to a new medication. On the good side, I’ve started my own business freelancing at the … Continue reading

Posted in allergies, disability, finances, government policy, illogical, organization, virus, work | Leave a comment

Stupid cost-cutting strategies harm patients

The Exceptional Access Program (EAP) provides a valuable service to Ontarians on expensive life-saving medications, such as biologic drugs. Unfortunately, cost-cutting is a fact of life these days, and, of course, as a taxpayer and a (temporarily) unemployed person, I … Continue reading

Posted in anger, bureaucracy, evidence-based medicine, Exceptional Access Program, fatigue, finances, frustration, gut problems, illogical, immune suppression, methotrexate, Ontario Ombudsman, prednisone, reimbursement, Remicade, steroids, symptoms, treatment, ulcers, work | Comments Off on Stupid cost-cutting strategies harm patients

I’m not the only one!

Here’s an example of a different patient in exactly the same situation as me, who got the Ontario Ombudsman to override the EAP’s insistence that he get off steroids, against the medical advice of his doctor! Good for him, but … Continue reading

Posted in anger, bureaucracy, evidence-based medicine, Exceptional Access Program, frustration, illogical, Ontario Ombudsman, reimbursement, Remicade, steroids | Comments Off on I’m not the only one!

I fear the taper

Fast forward more than a decade from the “good times” with the old fridge. . . Why blog? I’m a pretty private person — I’m not even on Facebook, I don’t have a Twitter account, etc. and, maybe even worse, … Continue reading

Posted in anger, arthritis, azathioprine, bureaucracy, difficulty concentrating, evidence-based medicine, Exceptional Access Program, fatigue, finances, frustration, government policy, gut problems, hydrocortisone, illogical, insurance, methotrexate, Ontario Ombudsman, prednisone, reimbursement, Remicade, steroids, symptoms, treatment, treatment guidelines, Trillium Drug Program, withdrawal, work | Comments Off on I fear the taper