Category Archives: finances

Canada’s Convention on the Rights of Persons with Disabilities Report

Canada’s first report on the Convention on the Rights of Persons with Disabilities was released today. I looked through it and I can’t say that there’s much new in it at all. It cites Statscan’s 2006 PALS data on disabilities, … Continue reading

Posted in bureaucracy, disability, finances, frustration, government policy, hidden disability, illogical, statistics, unpredictability | Leave a comment

10 years of Remicade!

My next dose of Remicade will be the first one in my second decade of Remicade. Whoa. That’s a crazy thing to contemplate. When I was in manic steroid mode last weekend, I thought about going through my records and … Continue reading

Posted in Exceptional Access Program, finances, mania, Remicade, work | 1 Comment

What, don’t you know who I am? I’m an irregular here!

One of the most annoying things about Crohn’s (other than the fatigue, flare-ups and susceptibility to viruses . . .) is the relative randomness of it all. I just don’t know when I’m going to be feeling well enough to … Continue reading

Posted in disability, finances, organization, partners, relationships, social life, unpredictability | Leave a comment

Mortality

A few months ago, when I started my business, I joined a professional association that offered what I thought was a group insurance plan. I felt like I’d struck gold! A group insurance plan would allow me to qualify for … Continue reading

Posted in diagnosis, disability, finances, friendship, insurance, mortality, partners, planning ahead, relationships, Remicade, steroids, withdrawal, work | Leave a comment

Remicade is not new or experimental, so why does Ontario treat it as if it were?

Why is Ontario’s Provincial Parliament so out of touch about biologic medications? These medications — especially Remicade (infliximab) — account for a significant and fast-growing chunk of Ontario’s health expenditures*, so a rational discussion of how to balance their costs … Continue reading

Posted in anger, bureaucracy, evidence-based medicine, Exceptional Access Program, finances, frustration, government policy, illogical, reimbursement, Remicade, treatment guidelines | Leave a comment

I’m in business. . . part of the time

A lot has happened since I last posted. On the bad side, I’ve had a whole whack of viruses and also an allergic reactions to a new medication. On the good side, I’ve started my own business freelancing at the … Continue reading

Posted in allergies, disability, finances, government policy, illogical, organization, virus, work | Leave a comment

Report on jobs & disabilities submitted to HR & Finance Ministers

To mark the 20th annual International Day of Persons with Disabilities, which was yesterday, the Panel on Labour Market Opportunities for Persons with Disabilities submitted its report to The Honourable Diane Finley, Minister of Human Resources and Skills Development and the Honourable Jim Flaherty, … Continue reading

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New stats!

The Crohn’s and Colitis Foundation of Canada just released a report on the Impact of Inflammatory Disease in Canada. Pages 47-49 in particular, which deal with the costs of medications and their burden for patients with Crohn’s, and pages 53-57 … Continue reading

Posted in accommodations, disability, fatigue, finances, government policy, gut problems, insurance, relationships with colleagues, relationships with medical professionals, Remicade, treatment, work | Comments Off on New stats!

Stupid cost-cutting strategies harm patients

The Exceptional Access Program (EAP) provides a valuable service to Ontarians on expensive life-saving medications, such as biologic drugs. Unfortunately, cost-cutting is a fact of life these days, and, of course, as a taxpayer and a (temporarily) unemployed person, I … Continue reading

Posted in anger, bureaucracy, evidence-based medicine, Exceptional Access Program, fatigue, finances, frustration, gut problems, illogical, immune suppression, methotrexate, Ontario Ombudsman, prednisone, reimbursement, Remicade, steroids, symptoms, treatment, ulcers, work | Comments Off on Stupid cost-cutting strategies harm patients

Crohn’s and the job hunt

This economy is not great for job hunting, and that’s a fact for pretty much everyone. But for people with disabilities, it’s even more daunting to find a suitable job. There are several issues at play. David Onley, Ontario’s Lieutenant Governor, … Continue reading

Posted in accommodations, bias, coping skills, disability, fatigue, finances, frustration, hidden disability, immune suppression, mobility impairment, organization, planning ahead, relationships, relationships with colleagues, Trillium Drug Program, withdrawal, work | Comments Off on Crohn’s and the job hunt