Category Archives: insurance

Here we go again: another EAP backlog

The last week has been fairly trying. It started off last week with me eating something that would normally not be a problem, but that obviously was not OK for me to eat so far into the treatment cycle: vegetarian … Continue reading

Posted in backlog, biologics, bureaucracy, disability, Exceptional Access Program, fatigue, finances, food, frustration, gut problems, Ontario Ombudsman, reimbursement, relationships with colleagues, Remicade | Leave a comment

National pharmacare in the news again

A new study came out in the Canadian Medical Association Journal (CMAJ) this week suggesting that national pharmacare in Canada would save a minimum of $4.2 billion. I’ve written about this topic before, and I hope that this study will … Continue reading

Posted in bureaucracy, finances, government policy, government spending, insurance, public outreach, Remicade, statistics, Twitter | Leave a comment

Under pressure

I saw my gastroenterologist the other day for a regular checkup. The first words out of my mouth were that I’ve been doing well lately on Remicade every 6 weeks, much better than I had been doing on it every … Continue reading

Posted in bureaucracy, evidence-based medicine, fatigue, government policy, illogical, reimbursement, relationships with medical professionals, Remicade, treatment | Leave a comment

National pharmacare in Canada creeps forward (I hope)

Earlier this month, the Canadian Press published an article about the current state of plans for a national pharmacare program in Canada based on a report by Dr. Marc-André Gagnon (“A Roadmap to A Rational Pharmacare Policy in Canada”). The way things stand … Continue reading

Posted in bureaucracy, Exceptional Access Program, government policy, government spending, illogical, insurance, reimbursement, statistics, treatment, Trillium Drug Program | 1 Comment

I’m one of the 12%!

Should I be celebrating? CIHI (the Canadian Institute for Health Information) released a report on spending on prescription drugs in Canada* (PDF) today. The summary page of the report is pretty clear: The majority of public drug spending is for a … Continue reading

Posted in bureaucracy, Exceptional Access Program, fatigue, government policy, government spending, insurance, Ontario Ombudsman, reimbursement, Remicade, statistics, treatment | Leave a comment

Mortality

A few months ago, when I started my business, I joined a professional association that offered what I thought was a group insurance plan. I felt like I’d struck gold! A group insurance plan would allow me to qualify for … Continue reading

Posted in diagnosis, disability, finances, friendship, insurance, mortality, partners, planning ahead, relationships, Remicade, steroids, withdrawal, work | Leave a comment

Remicade is not new or experimental, so why does Ontario treat it as if it were?

Why is Ontario’s Provincial Parliament so out of touch about biologic medications? These medications — especially Remicade (infliximab) — account for a significant and fast-growing chunk of Ontario’s health expenditures*, so a rational discussion of how to balance their costs … Continue reading

Posted in anger, bureaucracy, evidence-based medicine, Exceptional Access Program, finances, frustration, government policy, illogical, reimbursement, Remicade, treatment guidelines | Leave a comment

New stats!

The Crohn’s and Colitis Foundation of Canada just released a report on the Impact of Inflammatory Disease in Canada. Pages 47-49 in particular, which deal with the costs of medications and their burden for patients with Crohn’s, and pages 53-57 … Continue reading

Posted in accommodations, disability, fatigue, finances, government policy, gut problems, insurance, relationships with colleagues, relationships with medical professionals, Remicade, treatment, work | Comments Off on New stats!

Stupid cost-cutting strategies harm patients

The Exceptional Access Program (EAP) provides a valuable service to Ontarians on expensive life-saving medications, such as biologic drugs. Unfortunately, cost-cutting is a fact of life these days, and, of course, as a taxpayer and a (temporarily) unemployed person, I … Continue reading

Posted in anger, bureaucracy, evidence-based medicine, Exceptional Access Program, fatigue, finances, frustration, gut problems, illogical, immune suppression, methotrexate, Ontario Ombudsman, prednisone, reimbursement, Remicade, steroids, symptoms, treatment, ulcers, work | Comments Off on Stupid cost-cutting strategies harm patients

Day 5 of taper

I’m actually feeling OK — only a bit fatigued, and with less of a runny nose than before. I’ve been alert enough to put together a position statement for this blog. It is based on research I did in 2010 … Continue reading

Posted in allergies, Exceptional Access Program, fatigue, reimbursement, withdrawal | Comments Off on Day 5 of taper