Category Archives: evidence-based medicine

Under pressure

I saw my gastroenterologist the other day for a regular checkup. The first words out of my mouth were that I’ve been doing well lately on Remicade every 6 weeks, much better than I had been doing on it every … Continue reading

Posted in bureaucracy, evidence-based medicine, fatigue, government policy, illogical, reimbursement, relationships with medical professionals, Remicade, treatment | Leave a comment

Flu shot timing

Flu shot season is already here. In a few days, once I get the logistics worked out, I’m going to be bugging everyone I work with to get their FREE flu shots ASAP so that herd immunity can help protect … Continue reading

Posted in evidence-based medicine, immune suppression, mania, organization, planning ahead, Remicade, steroids, virus | Leave a comment

Remicade is not new or experimental, so why does Ontario treat it as if it were?

Why is Ontario’s Provincial Parliament so out of touch about biologic medications? These medications — especially Remicade (infliximab) — account for a significant and fast-growing chunk of Ontario’s health expenditures*, so a rational discussion of how to balance their costs … Continue reading

Posted in anger, bureaucracy, evidence-based medicine, Exceptional Access Program, finances, frustration, government policy, illogical, reimbursement, Remicade, treatment guidelines | Leave a comment

Stupid cost-cutting strategies harm patients

The Exceptional Access Program (EAP) provides a valuable service to Ontarians on expensive life-saving medications, such as biologic drugs. Unfortunately, cost-cutting is a fact of life these days, and, of course, as a taxpayer and a (temporarily) unemployed person, I … Continue reading

Posted in anger, bureaucracy, evidence-based medicine, Exceptional Access Program, fatigue, finances, frustration, gut problems, illogical, immune suppression, methotrexate, Ontario Ombudsman, prednisone, reimbursement, Remicade, steroids, symptoms, treatment, ulcers, work | Comments Off on Stupid cost-cutting strategies harm patients

My diagnosis story

I mentioned in an earlier post that it took 4 years between when I first had (what I now know are) Crohn’s symptoms and when I got diagnosed. The on-again, off-again, unpredictable gut and arthritis symptoms I was having during … Continue reading

Posted in arthritis, bias, diagnosis, diagnostic tests, disability, evidence-based medicine, food, frustration, gut problems, hidden disability, immune suppression, mania, misdiagnosis, mobility impairment, prednisone, rash, relationships, relationships with medical professionals, side effects, steroids, symptoms, treatment, ulcers | Comments Off on My diagnosis story

I’m not the only one!

Here’s an example of a different patient in exactly the same situation as me, who got the Ontario Ombudsman to override the EAP’s insistence that he get off steroids, against the medical advice of his doctor! Good for him, but … Continue reading

Posted in anger, bureaucracy, evidence-based medicine, Exceptional Access Program, frustration, illogical, Ontario Ombudsman, reimbursement, Remicade, steroids | Comments Off on I’m not the only one!

I fear the taper

Fast forward more than a decade from the “good times” with the old fridge. . . Why blog? I’m a pretty private person — I’m not even on Facebook, I don’t have a Twitter account, etc. and, maybe even worse, … Continue reading

Posted in anger, arthritis, azathioprine, bureaucracy, difficulty concentrating, evidence-based medicine, Exceptional Access Program, fatigue, finances, frustration, government policy, gut problems, hydrocortisone, illogical, insurance, methotrexate, Ontario Ombudsman, prednisone, reimbursement, Remicade, steroids, symptoms, treatment, treatment guidelines, Trillium Drug Program, withdrawal, work | Comments Off on I fear the taper