Category Archives: mobility impairment

Shingles sucks.

About two weeks ago was mid-way through my latest Remicade cycle, so the ideal time to get the flu shot. I figured I’d feel mildly gross for two days or so, and be back at work by Monday. That did … Continue reading

Posted in coping skills, diagnosis, difficulty concentrating, fatigue, frustration, immune suppression, mania, mobility impairment, rash, Remicade, side effects, symptoms, treatment, vaccines, virus, wages, work | Leave a comment

Sleeping on ice vs. my “personal fear factor”

A few times in the last few weeks I had to sleep on ice packs for sacroiliac inflammation — that’s inflammation of the joints where the spine and pelvis meet. This kind of inflammation is a known complication of Crohn’s, … Continue reading

Posted in allergies, arthritis, diagnostic tests, food, mobility impairment, social life, symptoms, treatment | 1 Comment

The devil I know

Over the past few years, I’ve noticed that the number of days I spend too tired to work has increased. I also find that I can work fewer hours per day on average than I used to. This past winter … Continue reading

Posted in arthritis, biologics, fatigue, finances, friendship, frustration, gut problems, immune suppression, mania, mobility impairment, mortality, relationships with family, Remicade, social life, steroids, treatment guidelines, virus, withdrawal, work | 1 Comment

My diagnosis story

I mentioned in an earlier post that it took 4 years between when I first had (what I now know are) Crohn’s symptoms and when I got diagnosed. The on-again, off-again, unpredictable gut and arthritis symptoms I was having during … Continue reading

Posted in arthritis, bias, diagnosis, diagnostic tests, disability, evidence-based medicine, food, frustration, gut problems, hidden disability, immune suppression, mania, misdiagnosis, mobility impairment, prednisone, rash, relationships, relationships with medical professionals, side effects, steroids, symptoms, treatment, ulcers | Comments Off on My diagnosis story

Crohn’s and the job hunt

This economy is not great for job hunting, and that’s a fact for pretty much everyone. But for people with disabilities, it’s even more daunting to find a suitable job. There are several issues at play.┬áDavid Onley, Ontario’s Lieutenant Governor, … Continue reading

Posted in accommodations, bias, coping skills, disability, fatigue, finances, frustration, hidden disability, immune suppression, mobility impairment, organization, planning ahead, relationships, relationships with colleagues, Trillium Drug Program, withdrawal, work | Comments Off on Crohn’s and the job hunt