Category Archives: planning ahead

Just try harder

One of the things I hate very much about having a chronic/intermittent illness is that I can’t predict when I’ll be well enough to do the things I’d said I’d do or that I’d like to do, and when I’ll … Continue reading

Posted in accommodations, bias, coping skills, difficulty concentrating, disability, fatigue, food, friendship, hidden disability, immune suppression, organization, partners, planning ahead, relationships, relationships with colleagues, relationships with family, relationships with medical professionals, social life, unpredictability, work | Leave a comment

Colonoscopy allergy mystery

In June, I posted about being sent for drug allergy testing to see if I could use anti-inflammatory painkillers that I’ve had allergic reactions to before. I went for the testing about a month ago. First off, the doctors at the … Continue reading

Posted in allergies, colonoscopy, diagnostic tests, hidden disability, organization, planning ahead, relationships with medical professionals | Leave a comment

Scary times

Hi everybody. I haven’t been posting for a while because I’ve been sick a lot. Some of the time I was sick from colds being passed around because of the new school year, but some of it was Crohn’s. Twice … Continue reading

Posted in biologics, coping skills, diagnostic tests, fatigue, food, frustration, gut problems, immune suppression, organization, planning ahead, relationships with medical professionals, Remicade, treatment, ulcers, virus, work | Leave a comment

The devil I know, part II

About a year ago, I wrote about how Remicade is the devil I know — the immune suppression and fatigue can be very frustrating on their own, and the steroid rollercoaster I have every 6 weeks is seriously annoying, but there other … Continue reading

Posted in allergies, Benadryl, difficulty concentrating, fatigue, organization, partners, planning ahead, rash, Remicade, side effects, steroids, symptoms, treatment, unpredictability, withdrawal | Leave a comment

Back from the blackout, with a backlog

The last two months have been interesting. Work has been picking up, and, of course, I got a pile of it dumped on me just as I was heading into my “blackout period” — the week or so during which … Continue reading

Posted in accommodations, biologics, coping skills, disability, exercise, fatigue, frustration, hidden disability, immune suppression, mania, organization, planning ahead, Remicade, side effects, steroids, symptoms, treatment, virus, withdrawal, work | Leave a comment

Welcome to my normal

I was at a family event this past weekend while I was having steroid withdrawal. There’s nothing quite like looking dazed and then falling asleep on the floor in front of relatives you haven’t seen in a year — and … Continue reading

Posted in coping skills, difficulty concentrating, disability, fatigue, hidden disability, organization, planning ahead, relationships, relationships with family, side effects, steroids, symptoms, withdrawal | 1 Comment

No measles vaccine for me

So there has been an outbreak of measles in my region. I take public transportation regularly and I’m not a hermit, so there is a real chance that I could be exposed to the measles virus if an infectious person … Continue reading

Posted in diagnostic tests, immune suppression, organization, planning ahead, public outreach, relationships with medical professionals, Remicade, social life, treatment guidelines, virus | Leave a comment

Flu shot timing

Flu shot season is already here. In a few days, once I get the logistics worked out, I’m going to be bugging everyone I work with to get their FREE flu shots ASAP so that herd immunity can help protect … Continue reading

Posted in evidence-based medicine, immune suppression, mania, organization, planning ahead, Remicade, steroids, virus | Leave a comment

Mortality

A few months ago, when I started my business, I joined a professional association that offered what I thought was a group insurance plan. I felt like I’d struck gold! A group insurance plan would allow me to qualify for … Continue reading

Posted in diagnosis, disability, finances, friendship, insurance, mortality, partners, planning ahead, relationships, Remicade, steroids, withdrawal, work | Leave a comment

Three weeks post-prednisone

Just checking in after 3 weeks without my 1 mg crutch of 10.5 years. I’m all right — I suppose — but all my Crohn’s symptoms are just that little bit worse since I went off prednisone. I’ve been getting … Continue reading

Posted in arthritis, coping skills, food, gut problems, organization, planning ahead, prednisone, rash, Remicade, steroids, symptoms, ulcers | Comments Off on Three weeks post-prednisone