Category Archives: coping skills

Naps and graphs

[Click on any graph to enlarge] For the past 4 Remicade cycles, I tracked how many hours I napped per day. Though I know I didn’t manage to record 100% of all naps, my records are reasonably accurate. I dumped … Continue reading

Posted in fatigue, organization, Remicade, social life, statistics, steroids, symptoms, unpredictability, withdrawal | Leave a comment

Toilet talk

I’m interested in linguistics and communication in general, so it makes sense that I spend a certain amount of time thinking about the kinds of things that Crohn’s makes it imperative to discuss. At the same time, I didn’t grow … Continue reading

Posted in coping skills, fatigue, friendship, gut problems, partners, relationships, relationships with colleagues, relationships with medical professionals | Leave a comment

What, don’t you know who I am? I’m an irregular here!

One of the most annoying things about Crohn’s (other than the fatigue, flare-ups and susceptibility to viruses . . .) is the relative randomness of it all. I just don’t know when I’m going to be feeling well enough to … Continue reading

Posted in disability, finances, organization, partners, relationships, social life, unpredictability | Leave a comment

Flu shot timing

Flu shot season is already here. In a few days, once I get the logistics worked out, I’m going to be bugging everyone I work with to get their FREE flu shots ASAP so that herd immunity can help protect … Continue reading

Posted in evidence-based medicine, immune suppression, mania, organization, planning ahead, Remicade, steroids, virus | Leave a comment

Postdoc land: the middle of somewhere

I meant to post this in June, but so much was happening, and then I got sick, so here it is, more than 3 months late: —– I got a job! Well, I didn’t exactly get a normal job — … Continue reading

Posted in accommodations, bureaucracy, disability, organization, work | Leave a comment

Mortality

A few months ago, when I started my business, I joined a professional association that offered what I thought was a group insurance plan. I felt like I’d struck gold! A group insurance plan would allow me to qualify for … Continue reading

Posted in diagnosis, disability, finances, friendship, insurance, mortality, partners, planning ahead, relationships, Remicade, steroids, withdrawal, work | Leave a comment

I’m in business. . . part of the time

A lot has happened since I last posted. On the bad side, I’ve had a whole whack of viruses and also an allergic reactions to a new medication. On the good side, I’ve started my own business freelancing at the … Continue reading

Posted in allergies, disability, finances, government policy, illogical, organization, virus, work | Leave a comment

Three weeks post-prednisone

Just checking in after 3 weeks without my 1 mg crutch of 10.5 years. I’m all right — I suppose — but all my Crohn’s symptoms are just that little bit worse since I went off prednisone. I’ve been getting … Continue reading

Posted in arthritis, coping skills, food, gut problems, organization, planning ahead, prednisone, rash, Remicade, steroids, symptoms, ulcers | Comments Off on Three weeks post-prednisone

Crohn’s and the job hunt

This economy is not great for job hunting, and that’s a fact for pretty much everyone. But for people with disabilities, it’s even more daunting to find a suitable job. There are several issues at play.┬áDavid Onley, Ontario’s Lieutenant Governor, … Continue reading

Posted in accommodations, bias, coping skills, disability, fatigue, finances, frustration, hidden disability, immune suppression, mobility impairment, organization, planning ahead, relationships, relationships with colleagues, Trillium Drug Program, withdrawal, work | Comments Off on Crohn’s and the job hunt