Category Archives: allergies

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The last two treatment cycles have been weird. Two cycles ago was great. I had a lot of energy and didn’t feel sick for most of the time. Work went very well. I also had the energy to do some … Continue reading

Posted in allergies, exercise, fatigue, food, frustration, gut problems, psoriasis, social life, treatment, virus, work | Leave a comment

Colonoscopy allergy mystery

In June, I posted about being sent for drug allergy testing to see if I could use anti-inflammatory painkillers that I’ve had allergic reactions to before. I went for the testing about a month ago. First off, the doctors at the … Continue reading

Posted in allergies, colonoscopy, diagnostic tests, hidden disability, organization, planning ahead, relationships with medical professionals | Leave a comment

Sleeping on ice vs. my “personal fear factor”

A few times in the last few weeks I had to sleep on ice packs for sacroiliac inflammation — that’s inflammation of the joints where the spine and pelvis meet. This kind of inflammation is a known complication of Crohn’s, … Continue reading

Posted in allergies, arthritis, diagnostic tests, food, mobility impairment, social life, symptoms, treatment | 1 Comment

The devil I know, part II

About a year ago, I wrote about how Remicade is the devil I know — the immune suppression and fatigue can be very frustrating on their own, and the steroid rollercoaster I have every 6 weeks is seriously annoying, but there other … Continue reading

Posted in allergies, Benadryl, difficulty concentrating, fatigue, organization, partners, planning ahead, rash, Remicade, side effects, steroids, symptoms, treatment, unpredictability, withdrawal | Leave a comment

I’m in business. . . part of the time

A lot has happened since I last posted. On the bad side, I’ve had a whole whack of viruses and also an allergic reactions to a new medication. On the good side, I’ve started my own business freelancing at the … Continue reading

Posted in allergies, disability, finances, government policy, illogical, organization, virus, work | Leave a comment

Day 5 of taper

I’m actually feeling OK — only a bit fatigued, and with less of a runny nose than before. I’ve been alert enough to put together a position statement for this blog. It is based on research I did in 2010 … Continue reading

Posted in allergies, Exceptional Access Program, fatigue, reimbursement, withdrawal | Comments Off on Day 5 of taper

Prednisone pros and cons

I’ve been somewhat fearful about going off prednisone, but it won’t be all bad. Here is my list of pros and cons about being on a low dose of prednisone: Pros of staying on prednisone: Prednisone, even on low doses, … Continue reading

Posted in allergies, arthritis, Exceptional Access Program, fatigue, prednisone, steroids, withdrawal | Comments Off on Prednisone pros and cons

Day 4 is not so bad

It’s day 4 of no prednisone, a sunny and warm day. I had to sleep with a heating pad last night because of chronic low temperature (me, not the air) and a Benadryl (super-runny nose) but, otherwise, things are all … Continue reading

Posted in allergies, difficulty concentrating, fatigue, hydrocortisone, prednisone, steroids, withdrawal | Comments Off on Day 4 is not so bad