Monthly Archives: August 2012

Crohn’s and the job hunt

This economy is not great for job hunting, and that’s a fact for pretty much everyone. But for people with disabilities, it’s even more daunting to find a suitable job. There are several issues at play. David Onley, Ontario’s Lieutenant Governor, … Continue reading

Posted in accommodations, bias, coping skills, disability, fatigue, finances, frustration, hidden disability, immune suppression, mobility impairment, organization, planning ahead, relationships, relationships with colleagues, Trillium Drug Program, withdrawal, work | Comments Off on Crohn’s and the job hunt

Day 5 of taper

I’m actually feeling OK — only a bit fatigued, and with less of a runny nose than before. I’ve been alert enough to put together a position statement for this blog. It is based on research I did in 2010 … Continue reading

Posted in allergies, Exceptional Access Program, fatigue, reimbursement, withdrawal | Comments Off on Day 5 of taper

I’m not the only one!

Here’s an example of a different patient in exactly the same situation as me, who got the Ontario Ombudsman to override the EAP’s insistence that he get off steroids, against the medical advice of his doctor! Good for him, but … Continue reading

Posted in anger, bureaucracy, evidence-based medicine, Exceptional Access Program, frustration, illogical, Ontario Ombudsman, reimbursement, Remicade, steroids | Comments Off on I’m not the only one!

This is me on steroids

So, about prednisone. There are probably thousands of blogs and other things out there explaining how prednisone makes people go “crazy.” (1.2 million hits for prednisone + crazy alone). It certainly has effects on personality. I’ve heard that some people … Continue reading

Posted in mania, side effects, withdrawal, work | Comments Off on This is me on steroids

Prednisone pros and cons

I’ve been somewhat fearful about going off prednisone, but it won’t be all bad. Here is my list of pros and cons about being on a low dose of prednisone: Pros of staying on prednisone: Prednisone, even on low doses, … Continue reading

Posted in allergies, arthritis, Exceptional Access Program, fatigue, prednisone, steroids, withdrawal | Comments Off on Prednisone pros and cons

Day 4 is not so bad

It’s day 4 of no prednisone, a sunny and warm day. I had to sleep with a heating pad last night because of chronic low temperature (me, not the air) and a Benadryl (super-runny nose) but, otherwise, things are all … Continue reading

Posted in allergies, difficulty concentrating, fatigue, hydrocortisone, prednisone, steroids, withdrawal | Comments Off on Day 4 is not so bad

3 days in

This is day 3 of my prednisoneless life. I feel spaced out, sleepy, inarticulate, clumsy, and quite sneezy and stuffy, but not as awful as I thought I would be. Chills, shakes and sweats are mostly gone (I had a … Continue reading

Posted in arthritis, difficulty concentrating, fatigue, prednisone, steroids, withdrawal | Comments Off on 3 days in

I fear the taper

Fast forward more than a decade from the “good times” with the old fridge. . . Why blog? I’m a pretty private person — I’m not even on Facebook, I don’t have a Twitter account, etc. and, maybe even worse, … Continue reading

Posted in anger, arthritis, azathioprine, bureaucracy, difficulty concentrating, evidence-based medicine, Exceptional Access Program, fatigue, finances, frustration, government policy, gut problems, hydrocortisone, illogical, insurance, methotrexate, Ontario Ombudsman, prednisone, reimbursement, Remicade, steroids, symptoms, treatment, treatment guidelines, Trillium Drug Program, withdrawal, work | Comments Off on I fear the taper

I blamed the fridge. . .

I was diagnosed with Crohn’s disease in 2002, but I had symptoms for 4 years before that. In fact, I had a lot of different symptoms, but nobody had any idea that they were Crohn’s — it does not run in my … Continue reading

Posted in arthritis, frustration, gut problems, symptoms | Comments Off on I blamed the fridge. . .

Welcome

Welcome to this blog. I am new to blogging, so bear with me. In the meantime, this is exactly what I think about Crohn’s disease:

Posted in diagnostic tests, frustration, IV | Leave a comment